a ribbon at a time

new ways of loving

2006-10-10T22:00:00.000-05:00

two people i love with abandoment sang this song to me. they sang it to me in the lobby of m.d. anderson hospital. i walked in and there they were, one playing guitar and singing, the other singing while grabbing me in her arms and dancing. right there ... singing and dancing, and crying. they are teaching me new ways of saying 'i love you'.

after too many months/years i finally understand. my cancer is not just my cancer. this damned thing has invaded all those who love me. we are all survivors. we will all liveSTRONG.

maybe tonight, maybe tomorrow

e

please listen

2006-09-20T00:22:00.000-05:00

a friend shared this with me today:

when i ask you to listen to me and you start giving me advice, you have not done what i asked.
when i ask you to listen to me and you begin to tell me why i shouldn't feel that way, you are trampling on my feelings.
when i ask you to listen to me and you feel you have to do something to solve my problem, you have failed me, strange as that may seem.
listen!
all i ask is that you listen.
don't talk or do -- just understand me.

long distant call

2006-09-18T20:42:00.000-05:00

i picked up the phone to call you today. it wasn't until i pulled up my contact list that i remembered deleting your number after the memorial service. i called your number anyway. i don't know what i expected. maybe your husband or son and i would pretend to be calling to say hello, to see how they are doing. at the very least i hoped to reach your family, a connection to you. but the phone had been disconnected. i felt so very alone. i needed to talk. i needed someone who would understand. the type of understanding that comes from traveling the same path. i didn't need tears, worries or jokes to make light of the situation. i needed to be heard.

i sat in the parking garage and cried.

i hate taking this journey alone.

missing you,
e

2006-09-18T11:47:00.000-05:00

i've come undone. a cintrfuge. spinning. spinning. pieces of me breaking apart - flung wildly to the four winds.

can i put myself back together? will the pieces find their way to the right spot? or will time only smush the pieces here and there, a hodgepodge, out-of-order version of who i could be, who i should be, who i am meant to be?

i've come undone.

high on life

2006-09-04T22:44:00.000-05:00

what a strange weekend. i've felt surprisingly jovial despite several issues that are weighing heavily on my heart and mind:

*homelife
*lonesome for two friends, one i lost to cancer the other to apathy/neglect. despite the cause, i miss them all the same
*side-effect of chemo may prove to be more dangerous than the cancer. more appts, more procedures
*anxiety over choices
*worry about my parents and their care. they are so far away and aging rapidly.
*more, too much more

so why jovial? I DON'T KNOW. maybe its just life. life! as corny as it sounds, i'm high on life.

marco

2006-09-03T00:47:00.000-05:00

marco called friday. marco is one of 'my' research nurses. during treatment marco or rhodette would call at least twice weekly. i always enjoyed hearing from them. it was a joy to hear his voice this week.

what has occupied my thoughts since the phone call are my friends. you see, marco asked about my friends, by name. he knows my friends! i am not surprised he remembers them; i confess they are all unique characters. marco mentioned that he typically does not meet the friends of the patients.

i have been overwhelmed with the thought of gratitude. how grateful i am to have friends who stood beside me, held my hand, inconvenienced themselves to be with me during some unpleasant and difficult times. think about it. they took off work, some also had to arrange child care, some drove extended distances just to spend hours and hours in a hospital. i was not the best of company or friend during these times. i was scared, in pain, and sick. and they did all of this for what? for me!

so today's thought of gratitude is friends. not only the friends themselves, but the comfort in knowing the depth of commitment of true friendship. i pray that i, too, will be as dedicated of a friend.

roller coasters

2006-08-31T20:19:00.000-05:00

i am a contradiction in emotions. i am high and distraught at the same time. i seem to have no inbetweens.

i want to live inbetween. it is safer there, cozy and warm. i am too exhausted to 'feel' the true depths of what lies just beneath the surface, too frightened to face what i know to be waiting. i am searching for a safe place to rest, to regain my strength. i need energy on reserve to ride this roller coaster, the highs and the lows.

why me?

2006-08-21T18:56:00.000-05:00

when i was first diagnosed i attend the "40 and under" support group. the name had nothing to do with our ages. it was the nickname coined to discribe our prognosis, less than 40% chance of making "it". specifically making it 5 yrs. it was a depressing group (go figure), so i only attended a few times.

i remember my last session. one brave soul said something we all would think at some point in our battle, "why me?" a young woman in her 20's simply replied, "why not me!"

WHY NOT ME! this declaration has haunted me for 3 yrs.

today i was told that i am cancer free. did you hear me? IN THIS MOMENT OF TIME, I AM CANCER FREE! bitter sweet news. in the past 3 yrs i have met some amazing people. i have loved and lost friends. most recently i had to say goodbye to a close friend whose life dramatically changed me and whose death has left a hole in my heart, in my spirit. why didn't she survive? why? then that old question flooded my thoughts, why am i the one that is cancer free? WHY ME? and as hard as it was to accept the first time i heard the question voiced, deep down i heard that young woman whisper, "why not me!"

whack

2006-08-06T22:56:00.000-05:00

whack-a-mole sunday - means monday has to be better!

chant

2006-08-05T23:57:00.000-05:00

i chanted tonight. i haven't seriously chanted in months. tonight i joined a group of more than 50. the unison drone and rhythm were simultaneously relaxing and exhilarating. i could feel the vibrations deep in my chest. so much has been on my mind and in my heart, building up for months maybe even yrs. in the middle of chant i began weeping uncontrollably. for no reason, for every reason. it was a cleansing and rejuvenating evening.

loss

2006-08-03T21:06:00.000-05:00

how do you help someone who is grieving? please tell me because i am at a loss. i see in my friend's eyes the deep pain and i have no words to comfort. my heart aches for her.

reason, moment, season, lifetime

2006-08-03T01:09:00.000-05:00

old friends,
old friends
sat on their park bench
like bookends.
a newspaper blown though the grass
falls on the round toes
of the high shoes
of the old friends.

old friends,
winter companions,
the old men
lost in their overcoats,
waiting for the sunset.
the sounds of the city,
sifting through trees,
settle like dust
on the shoulders
of the old friends.

can you imagine us
years from today,
sharing a park bench quietly?
how terribly strange
to be seventy.
old friends,
memory brushes the same years
silently sharing the same fears
...... paul simon

friends fit into different categories. we all know this is true. each plays an important role in our life but each role is distinct.

friends 'for a reason'. those that we meet because our children are on the same little league team, attend the same place of worship, etc. we enjoy each others' company, but it rarely extends past the environment or reason that brought us together.

friends 'for a moment'. these friendships serve great purpose but only for a brief time. like a match that burns hot and soon dies. these friendships have have a short shelf life. for me, these friendships help during specific times and almost seem predestined.

friends 'for a season'. a season in life: youth, high school, college, early parenting, etc. we remember these friendships with great fondness. these are the people who have shared our history. this is why we enjoy reunions - we relive that place in time - but after the reunion we rarely see one another again, at least for 10 yrs.

friends 'for a lifetime'. we are lucky to find a lifetime friend. most do not find this in marriage, not with over 50% of marriages ending in divorce. so who are these friends? these are the friends that you know "will be there" without you having to ask. these are the friends that are not impeded by distance or circumstances. these are the friends that can always count on you and you on them.

my friend "d" and i have always said we would stick together not only through "thick and thin" but also "sick and sin", and there have been equal amounts of each from both of us. but it is not just "d". i have come to realize how sincerely blessed i am. last week i had surgery. my cancer had metastasized. i tried to make light of it, but the seriousness was obvious. as i walked into admit, early in the morning, i was met by "d", a.l. and father s. they were there for me and for my son who was struggling with what was happening. it was a relief, a comfort, to know that they would be there for him. before the surgery i saw my minister (friend for a reason). when i came-to, i was greet by 2 more life chums. later in the afternoon r.c. showed up and stayed until the next morning. he had good company, because "d" did not leave either. how did this happen? how did i wind-up with so many friends for a lifetime? i know that i could ask anything of these friends and they of me. even better, we don't have to ask - we are just "there" without asking.

i cherish all of my friendships: reason, moment, season and lifetime. each fills a need and place in my growth and life and hopefully i in theirs'. i only now categorize them to prevent pain or awkward situations. it would not be fair to expect a friend for a reason or moment to fill the role of a friend for a lifetime. it would be disrespectful. it also helps ease the pain when those friendships, out of necessity, fade away. the friendship served it's time and purpose and must move on.

friendships for a reason, moment, season or lifetime - i am blessed by all.

e

vampire visit

2006-07-20T23:07:00.000-05:00

what a hoot. i was facing a long and slightly stressful day. -not horrible- just unpleasant. i looked up and in swept a crazy woman with vampire fangs and a black cape. she flew in offering to "suck my blood." i busted out laughing. how corny. how embarrassing. how wonderful! few others appreciated our humor, but few others are a "sick" as we are! we sat and visited while i was being refueled. time flew. it was as if we were at a favorite cafe sipping on a cappuccino (*notice i no longer say wine, jack, beer, etc.)

the best medicine i received today was my friend!
e

"i just want to live while i'm alive"

2006-07-20T18:21:00.000-05:00

get ready to rock! sing along; you know the words ...

it's my life
and it's now or never
'cause i ain't gonna live forever
i just want to live while i'm alive
(it's my life)
my heart is like an open highway
like Frankie said
i did it my way
i just want to live while I'm alive
it's my life
---- bon jovi

how do i make the most of every moment? how do i live a life of meaning? living wild is not the answer. it wasn't in college, it isn't now. adventures and travel are exhilarating, but once you are there - well, there you are, with yourself, the same self you tried to leave behind.

my goal is to live deeper, live richer. it is a pursuit to live in the moment. how many times have i scarfed down a meal and never truly appreciated the flavors, the textures, the aromas? or driven down the road without noticing the blooms, the trees, the couples walking ...? i remember a quote - i don't remember from whom, that says, "i think it pisses god off if you walk by the color purple in a field without noticing." i do not want to miss the purple anymore. a few nights ago i was visiting with 3 friends. we literally talked for HOURS. my favorite moment was when i finally SHUT UP and listened. i, not only,listened to what was being said, i listened to the softness of 3 women's voices. it was low and melodious. i could hear their breathing. their voices changed pitch and tambour with the intensity of conversation. and the laughter was contagious. i sat back and took a mental photo. i want an album full of such moments.

is it possible to live with intent everyday? is it possible to consciously be in the moment - every moment? maybe not every moment, but the moments lived in 'the groove' are enough reward to continue this pursuit.

i just want to live while i'm alive,
e

Mother to Son

2006-07-10T21:16:00.000-05:00

Mother to Son
by Langston Hughes

Well, son, I'll tell you:
Life for me ain't been no crystal stair.
It's had tacks in it,
And splinters,
And boards torn up,
And places with no carpet on the floor—
Bare.
But all the time
I'se been a-climbin' on,
And reachin' landin's,
And turnin' corners,
And sometimes goin' in the dark
Where there ain't been no light.
So, boy, don't you turn back.
Don't you set down on the steps.
'Cause you finds it's kinder hard.
Don't you fall now—
For I'se still goin', honey,
I'se still climbin',
And life for me ain't been no crystal stair.

trestle screaming

2006-07-10T17:07:00.000-05:00

how to trestle scream:

stand under the trestle, wait for the train to cross, fill your chest with air and scream. scream from the depths of your soul. scream for all the tears you have cried and for those you can not. scream for the fear that dwells within. scream to remind yourself you are alive!

' an exhilerating purge of negative energy that's a hell-of-a-lot (not a metric unit) of fun.

scream with a friend or alone. repeat as necessary.

all screamed out,
e

a simple day

2006-07-09T16:23:00.000-05:00

aaaahhhhh ... a simple yet lovely day

flying kites in zilker park

snacking on falafels from a favorite deli and bakery

walking 'round town lake

stretching back on the banks of the lake and waiting for the bats to fly out from under the congress avenue bridge (not a lot right now, but thats ok.)

strolling 6th street. sampling a little jazz, a little country (very little), a bit of old rock, and something i can't begin to describe. dancing here and there - when the songs were right and the crowd forgiving. and promising myself that i was not going to obsess over how much younger everyone else looked.

aaaahhhhh ... a simple yet lovely day

face lift

2006-07-06T19:04:00.000-05:00

feng-shui or face-lift?
i don't know, but it feels good.
a new attitude

whack

2006-07-06T17:34:00.000-05:00

whack-a-mole thursday

holding on,
e

super rock

2006-07-05T20:50:00.000-05:00

6 boys
20 hamburgers
5 gallons kool-aid
3 large bags of chips
surround sound booming
sub-woofer vibrating
1 "rock star, supernova" show

a supernova party! our house rocked like a low-rider cruising sonic. the best show, by far, was in my living room; superstars undiscovered, singing and dancing for a most appreciative audience!

not so sleepless

2006-07-05T19:09:00.000-05:00

seems as if i frequently think about and blog about sleep. hmmm ... i wonder what this says about me?

i've spent many sleepless nights wishing i could sleep; now that i can sleep i spend many sleepless nights wishing i had the answers to all of my questions. but the past couple of nights have been a pleasant surprise. my dad gave me one of his handkerchiefs doused with oil of jasmine. it is suppose to help you attain a deeper sleep. i slip the hankie in-between my pillow and pillow case. and then there is the pillow case. a friend MADE me two satin pillow cases. they are incredibly soft and cool when i lay my head down.

i look forward to bedtime. i think of my father, his handkerchiefs, the smell of jasmine (my grandmother's scent). at that moment he is so close; i am a child in his arms and he is strong and young again. the softness of the pillow cases reminds me of my blessings. to have a friend take the time to make such a gift. i have often forgotten the preciousness of a gift made; it is a gift of oneself, of herself.

not far out of the bed,
e

happy birthday to us!

2006-07-04T16:01:00.000-05:00

declaration of independence (1776)

"we hold these truths to be self-evident, that all men are created equal, that they are endowed by their creator with certain unalienable rights, that among these are life, liberty and the pursuit of happiness. that to secure these rights, governments are instituted among men, deriving their just powers from the consent of the governed, that whenever any form of government becomes destructive of these ends, it is the right of the people to alter or to abolish it, and to institute new government, laying its foundation on such principles and organizing its powers in such form, as to them shall seem most likely to effect their safety and happiness."

hunger

2006-07-03T17:36:00.000-05:00

i hunger. i long. i know what it is i desire. deeper, richer, more fulfilling relationships.

spiritual relationships
my spiritual life has wandered, questioned, explored, grown and evolved. i have found a spiritual understanding and relationship. i want more. i want to be closer to my god. i have a need to inhale the spirit with each breath, to feel god within and all around. i want to be consumed by what i have only glimpsed. i am looking for the path ...

personal relationships
i have held to many friends at arms distance, physically and emotionally. self preservation. but this self preservation has caused a starvation for human contact. i have guarded myself into a desperate hunger. i too easily avoid the closeness and intimacies available to me. i am looking for the path ...

self relationship
loving myself. accepting who i am, and who i am not. finding peace within. i am looking for the path ...

e

the perfect day

2006-06-24T10:12:00.000-05:00

just before he fell asleep from exhaustion, he said it had been a perfect day.

a perfect day to man-child was playing his guitar on stage, in a band. his best friends and his family in the audience. and then a celebratory dinner, with friends and family, at his all-time favorite resturant, freebirds burrito.

a perfect day for me was seeing man-child's face lit-up with a smile that melts my heart. exuberance oozing from every inch of his body that did not stop until he closed his eyes, last night, to dream about the day.

there's no crying in rock 'n roll

2006-06-24T10:06:00.000-05:00

in league of their own, tom hanks' character said, "there's no crying in baseball." some might say the same rule applies to rock, but they would be wrong.

my son's band camp had their concert last night. i was amazed and amused. he was on stage playing 'guns and roses' and having a great time; my little boy ... guns and roses! at the end of the song i turned to see my husband with a tear rolling down his cheek.

was the tear a father's pride? was it the wish his own parents' were alive to see his child's accomplishments? or was it the thought, "o.m.g. we've created a monster?"

what ever the source of the tear, i now know the man does have emotions! and, he's a good dad.

a week of friends

2006-06-22T10:38:00.000-05:00

i had to say goodbye to a friend monday. she was more than a friend, it was deeper and personal - i do not have the words to catagorize my love for her. so monday was life changing - no, she was life changing. i am typically private and guarded with my emotions, but i openly wept throughout the service. i wept during the songs she asked me to sing. and i cried a continual prayer in my heart, "Father, thank you, thank you for blessing me with this great love and light." for as much as it hurt i realize that i am so blessed to love someone, that saying goodbye to hurts so damn much.

i have filled my week with friends. wow - that is something to celebrate. i enjoyed an afternoon hanging out at a friend's house tuesday. we moved furniture & laughed; i eavesdropped on her childrens' conversations and giggles. i loved being a part of that energy. i needed it.

yesterday was spent with an old friend. we have 'been through it' together. there were times i did not believe our friendship could endure the storms, but i knew we'd always love each other. yesterday was not a day for philosophical thought or spiritual pursuits, yesterday was a day for sophmoric humor and belly laughing. i laughed so hard and for so long i wore myself out! i did! i came home early because i was exhausted! what a day!

i have had a week of friends. saying goodbye to one and embrassing the time i have been given with others.

e

man-child rocks

2006-06-19T17:25:00.000-05:00

my son is attending a band camp, a rock 'n roll band camp. (is this a sign of bad parenting that we actually support his rock guitar passion?) the camp logo reads, "no canoes, lots of rock." he has anticipated it for 3+ months. he earned 1/2 the money to pay for camp. and he has practiced, WITH THE AMP AT FULL VOLUME, every guitar riff ever played - over and over again. he is an obsessed man-child. camp started today; i was out of town last night. he was nervous and excited and could not sleep. my cell phone rang at 12:14 a.m. in the 5 secs it took me to answer the phone every horrible nightmare leaped into my brain. with great relief i entertained his conversation:

man-child: mom, its me
mom: (i only have one child; if someone calls me "mom" i have a good idea who it must be, esp calling from my home caller id number) ARE YOU OKAY? ARE YOU? WHAT'S WRONG?
man-child: mom? did i wake you?
mom: (12:14 a.m. YES!) its okay, what's going on.

man-child: you know i have camp tomorrow.
mom: (everyone knows he has camp tomorrow) yes
man-child: i'm worried

man-child: mom, what if they ask me who i study with?
mom: tell them the truth, that you've taught yourself, that your mother tried to help but you never listen to her.
man-child: thanks mom ...

man-child: what if (during the audition) they ask me to do something that i don't know how to do?
mom: such as ...?
man-child: that's just it, i don't even know what i don't know.
mom: (logic like his mother's)

man-child: mom, i'm so excited. i'm scared, but i'm excited.
mom: i know.

man-child: dad's packed my lunch for me (hurray ... the earth did not quake), do you think it will hurt his feelings if i remake the sandwich the way you do with lettuce and tomatoes and cut it into 2 triangles?
mom: he will never know!

man-child: mom, i wish you were here. i can't fall to sleep.
mom: i wish i was there, too.

man-child: can i call you in the morning before we leave?
mom: you'd better

man-child: i love you mom
mom: i love you more

my man-child rocks,
e

Carol

2006-06-16T17:10:00.001-05:00

What though the radiance which was once so bright
Be now for ever taken from my sight,
Though nothing can bring back the hour
Of splendour in the grass, of glory in the flower;
We will grieve not, rather find
Strength in what remains behind
-Wordsworth

time well spent

2006-06-15T13:24:00.000-05:00

i have become very aware of time. time well spent. time wasted.

it is subjective. to me, time snuggling with a loved one is time well spent where time mindlessly laying around is time wasted and yet purposeful daydreaming can be time well spent. it is a personal interpretation.

today i was frustrated with what i perceived as a waste. sitting in a waiting room 2 1/2 hrs for an appointment. i was angry, anxious, frustrated and definitley wasting time. 2nd time this week and i had "had it." the room was full. no one was speaking, hell, no one was even making eye contact. we all thumbed through magazines half reading/half seething. and then i met marla. a woman in her 50's, alone, trembling. she was trying to open a prescription bottle of pain meds. she dropped the bottle and little pills went flying. everyone looked up and then immediately buried their heads back in their magazines. marla was on the floor gathering pills, weeping. i joined her on the floor and we started talking and then we started laughing so much the others listened in. the joke was "if they knew you spilled pain pills, they would all be on the floor too." marla and i sat on the floor for the next hour waiting for our appts. we talked, we exchanged personal info, we laughed, we were human.

that last hour was time well spent. and it had been my choice all along. i could pout and bitch about wasting time or i could embrace the time and do something with it. i'm just now learning it has always been my choice.

here's to you marla,

e

spending time

2006-06-14T23:40:00.000-05:00

spending time

it really is spending, isn't it? we have x amount of time and we choose how to invest it or blow it. like money we all have different amounts but unlike money we do not know just how much time is in our accounts.

today i spent an afternoon with friends. a wise investment. we went to a jeweler's supply store where i restocked on some basics (medium solder, a doz #1 blades, flux and pickle) and a small amount of silver. i love that store. it makes me smile and i don't know why. we ate at one of my favorite restaurants that serves spanish tapas and wonderful wine; my favorite - sangre de torro.

my friend harasses me saying that everything is all about me. today it was. i don't believe they had a bang-up time, but they indulged me and i appreciate it. i never want to be borish, but today i accepted their indulgence and selfishly enjoyed.

i consider today a great purchase. it was not the jeweler's supply store or the tapas and wine, but the time spent with friends.

today is closing, only enough time remains for a good sleep. in the morning my account will be replenished and i will get another opportunity to purchase more memories, more experiences ... more life.

e

under new management

2006-06-09T01:54:00.000-05:00

this blog is under new management. same person, new management.

i can not breath. the feeling of being overexposed makes me anxious.

i need to retreat and rebuild some walls. with my exoskeleton removed only the soft vunerable and defenseless parts of me remain.

i can't handle it!

a ribbon at a time

2006-04-23T21:44:00.000-05:00

i'll tell you how the sun rose,--
a ribbon at a time.
the steeples swam in amethyst,
the news like squirrels ran.
the hills untied their bonnets,
the bobolinks begun.
then I said softly to myself,
"that must have been the sun!"

but how he set, I know not.
there seemed a purple stile
which little yellow boys and girls
were climbing all the while
till when they reached the other side,
a dominie in gray
put gently up the evening bars,
and led the flock away.
- - emily dickinson